A picture of my sweet Ella and flowers her daddy bought her. This is the last day of her most recent episode. She feels so much better in this picture :)
Since my goal is to hopefully help someone else out there that is dealing with this or watching their poor child go through this, I thought I would share some of the websites that I found most helpful. Eventually I will learn how to properly post links to my blog, but this is still so new to me:)
Pfapa Websites --
http://www.rheumatology.org/practice/clinical/patients/diseases_and_conditions/pfapa.asp
http://www.aboutkidshealth.ca/En/HealthAZ/ConditionsandDiseases/InflammatoryConditions/Pages/Periodic-Fever-Adenitis-Pharyngitis-Aphthous-Ulcer-PFAPA-Syndrome.aspx
http://www.facebook.com/pages/Periodic-Fever-Syndrome-PFAPA/257930550886205
My daughter, Ella, is due for another 'episode' this weekend. She ended her last one last week and it was the worst one we've experienced thus far. Usually, after a bad episode she usually has a mild one.
I am praying for strength and trust in the Lord. I am thankful that this disorder is NOT life threatening but definitely it is life changing. I am really working hard to put 100% trust in God that He will see us through this!
"He who dwells in the shelter of the Most High will rest in the shadow of the Almighty.
I will say of the Lord, 'He is my refuge and my fortress, my God, in whom I trust'. "
Psalm 91:1-2
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