Ella flying a kite with her dad today. Enjoyed a great weekend outside! |
Ella has a great weekend. She has stayed fever free but has shown a few signs of an episode returning - sore neck, slightly swollen nodes, and two sores in mouth. Not sure what to make of it but I have seen this before - where she shows symptoms days before the high fever hits. We continue to pump her body full of tart cherries and I am hopeful it has helped! She's starting to get tired of the concentrate mixed with lemonade though. Her exact words "this is badugesting" (her word for disgusting) . I am now mixing it with apple juice!
Tomorrow morning we go to our infectious disease doctor appointment. We are all nervous, including Ella but most importantly we are just hoping and praying for answers. A lot is on our minds about it but we are grateful we are so close to some of the best hospitals in the country. I will update on her appointment and share what any news we come about!
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