Ella making her bunny egg craft. A sweet teacher from her school, Miss Shawn, sent her a care package in the mail; made her day. Ella made the orange and purple eggs all by herself and giving the purple one to her teacher, Miss Rene. :)
I am not going to lie, I have been struggling lately with my faith. I believe in God. I love God. I need God. That is all the same, but I am feeling like God is not hearing me, not seeing how much pain I am in. I just cannot watch another episode of Ella's. Her episodes seem to get closer together and more intense. I just can't imagine what the next one will be like, especially since we are about to try the steroid, pregnisone, on her. I think her doctor is understanding that I am at my whits end. He has referred us to a pediatric infectious disease doctor. We will take Ella in a couple of weeks. I am nervous and frightened of this appointment but I know having another set of medical eyes on Ella, especially a specialist, is a good thing. Maybe, just maybe, God is bringing us some answers and hopefully a solution. Another quote from Joel Osteen has helped 'reboot' my faith.
Get ready. God is saying, “It’s going to happen sooner than you think. I am shifting things in your favor. You’re going to come into acceleration.”
I LOVE the bunny eggs, Ella! :)
ReplyDeleteI'm so glad that I found this blog and your family's story. My 3 year old boy is going through the same and sees an infectious disease dr next week.
ReplyDeleteYour sweet Ella is in my prayers. The Lord is moving in these kids lives. I'm convinced that these fevers are going to strenthen my son's immune system to the point of him being able to travel third world countries or something to teach others about Christ-and he will be healthy. Wishing the best for you.